Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
my blog

Wednesday, December 22, 2010

Ready for Remission, are you out there?????

I am so tired, exhausted really.  Last night I woke up at 1:30, couldn't fall back asleep until 5:45.  I took a 2 hour nap today, yet I still feel so tired.  Made Christmas cookies today with help from my mother-in-law, yet feel like I did another of those darn marathons.  Every ache in my body has an ache.  My legs feel wobbly. My right eye is not so good right now.  I have a massive headache, but whose complaining.
I can hardly believe that Christmas is a couple of days away.  This year has passed by so fast.  I remember when I was younger, a year felt like it lasted forever.  Now I look at my kids, wonder where all the years went.  They are so big, teenagers, what happened to my babies?  I wish I could slow down time a little.  I am afraid if time goes to fast that I will become more disabled, less able to enjoy life. It is already hard enough as it is.
I find this blog to be very therapeutic.  I can let go of some of my emotions through it.  I try to be positive, but every once in a while I just feel drained.  It is hard to be so upbeat when you're body feels so beat up.  I am waiting for my break.  A nice long one without any relapses.  The one that supposed to come with RRMS.  I am ready for my remission, a very long remission I hope.  That's what I want for Christmas.  I want a very very long period of remission, with the ability to work normal hours and enjoy my kids, husband, my life.


http://www.godvine.com/Celtic-Woman-Sings-a-Breathtaking-Version-of-You-Raise-Me-Up-111.html


Sunday, December 19, 2010

Insomnia

Insomnia.  Boy do I have that.  Not sure if it's related to MS or not.  My husband says it is from "poor sleep hygiene".  Meaning that I don't turn things off that stimulate my brain, such as this little netbook of mine. I attribute it to odd sensations that I get in my legs, sometimes in my arms too.   It's hard to describe the sensation, other than tingling, creepy crawly feeling.  Makes me want to keep my legs moving around.
The night before last, well closer to morning, I had these sensations in both my arms and legs.  My husband woke up with me, as he couldn't sleep for other reasons.  A few minutes after I was up, I think I may have had some sort of seizure.  My body went rigid, for a few minutes, but the details are really fuzzy.  My hubby witnessed it,  it happened more than once, then I fell asleep for a long time waking up like 4 hours later.  The rest of the day I felt kind of "off" and drowsy. It was very strange, a little scary.  I have no idea if this is MS related or what.  Either way it was pretty scary.  I have not gone to the doctor with this, since I am not sure.  Waiting too see if it happens again.
Anyway I have been up since 3 a.m, can't sleep.  Odd sensations again.  Hoping it will pass.  Church today and I don' want to miss it.  I have had to miss the last couple of weeks. I don't want to miss anymore.  Church feels like my 2nd home, the  people there are great.  Makes me feel like I am home with people who love me.
I surely hope that I have not made to many spelling errors.  Having some brain fog at the moment.



http://www.youtube.com/watch?v=Dn7pWm4i0ZU