Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
my blog

Sunday, October 2, 2011

sanity

I got this MS poem off of the MS Society's discussion board and thought I would share it.  I guess you have to be able to laugh at yourself at times to keep some semblance of sanity.

I think that the side-effects from the seizure medication Topamax are starting to ware off some what.  I am starting to regain my sanity and a little more of my energy.  What I am losing is my right side.  UGHHHHH!!!!!!!!      My left side has been consistently weak for over a year and a half now, but my right side will be weak for a week or two and recover, but now I am afraid it's not recovering at all.  As Sir Winnie the Pooh says "Oh Bother".

I can tell you that I am a little bit afraid.  OK, a lot afraid.  Maybe, it's just seeming to take longer cause of this stupid Topamax making me loopy for so long and sleepy for so long.  Yea that's it.  That's what it is.

I did get to go to the Balloon Fiesta yesterday.  It was absolutely beautiful.  Over 400 hotair balloons launching over my head.  Used my walker with the built in seat and was able to to do it.  Usually refuse to use my walker and stick with my cane, but I would not been able to do it otherwise and it was definitely worth it.  The best part of it was that the Creamland Cow Shape Balloon actually took off this year.   Woo Hoo.  It's the little things in life that make you smile.  You have to enjoy these things and not take them for granted.  Life is grand, no matter how you have to enjoy it, make it work for you  :o)