Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Wednesday, July 20, 2011

New Study on Cost Effectiveness of MS Therapies : National MS Society

The Disease Modifying Drugs for MS are so expensive. I am on Copaxone and before I used the VA, my monthly copay with insurance was $250. It was outrageous. I can't see how anyone affords this. This is just one of my medications. Here is an article that talks about the cost and effectiveness: New Study on Cost Effectiveness of MS Therapies : National MS Society

Sunday, July 17, 2011

Hope Endures

Well, I kind of liked the video I posted last week, so I thought I would do another one today.

This one shows that the right side of my face is not working as it used to.  The muscle symmetry is missing.  It is weird how the nerves cross at the base of the head.  So like me, if you have problems using your left leg and left arm, then it is actually the right side of the brain that is most affected. 

 This is evident by the right side of the face being affected.  Whenever I have any relapses, my right vision is affected along with muscle control on the right side of my face. My left leg starts to drag and my left foot drop becomes more profound.  My left hand loses coordination to the point I can't even tap my fingers together rythmically.

If you close your eyes, hold out your arms, you should be able to touch your nose with each hand with no problem.  I can no longer do that with my left side.  Proprioception is the bodies ability to know where any anatomical part of the body is as well as sensations. 

I made this video of me singing (not great), but if you notice, the right side of my face does not react as the left side does.  It used to have symmetry, so this is not my normal.  Well, I guess it is my new normal.  Anyway, hope it brings you a little joy, probably most likely through laughter :o)