Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
my blog

Wednesday, June 8, 2011

Pain

Pain has been such an issue lately.  I hurt from head to toe.  I was or am weaning myself off of the amytriptilline, which I take for pain control, but I hurt so bad.  It's weird how this pain is so different than the pain you experience when you stub your toe or a paper cut on your finger.  My pain is aching, flu-like pain.  Also just my husbands touch on my arm sends off intense pain signals.  I don't know what to do.
I think I may increase my dose again, but I am nervous.  I think this medicine might be the cause of my "seizures" that I was diagnosed with last month.  I have to choose from the lesser of two evils I suppose.
Today I went outside and tended to my flowers. A few years ago my flower garden would have been so full of beautiful blooms.  This years garden looks very sparse, sad and pathetic, but I need to keep whatever I can going.   After the sunset, I pulled  a few weeds, and now I am completely wiped out.  My pain is everywhere now and so intense.
Maybe, one day I will have a beautiful garden again.

http://www.youtube.com/user/pianki?blend=1&ob=5