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Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Sunday, January 24, 2010

Today was definitely a day of rest for me.  Went to church and that was pretty much the extent of my activity.  It seems that even working the short 8 hour shifts I am doing just takes it all out of me.  I am down to 24 hours a week and just making follow up calls, seems easy enough, but it wipes me out especially if my days aren't spaced out.
I know that some people would have a hard time understanding the degree of exhaustion that some people with MS feel.  It is hard to explain.  I don't wake up exhausted, some days I do, especially after working 3 in a row, but usually it gets more profound as the day goes on.  I can do a few tasks during the beginning of the day and then I have to rest.  As the day progresses,  my legs start feeling heavier and I begin to stumble all over myself and it takes all my energy just to move around.  This has been a constant since April 2009.  Every once in a while it seems I can make a whole day pass and feel like a normal person, but for the most part everyday feels like I ran a million miles by the time night falls.

Blessed is the man who trusts in the Lord and has made the Lord his hope and confidence.          - Jeremiah 17:7

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