Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Thursday, February 11, 2010

oddity

Made it through 7 hours at work today, must be getting a little more stamina.
I noticed a new strange symptom the last few days.  So my left leg and foot have been my lingering problem since August of last year.  Always having the numbness and tingling.  Well now when I am barefoot on my tile floor, the temperature sensation in that foot is vastly different than my right.  It is so bizarre.  My right foot knows the tile is cold instantly, but my left foot has a very  remote sensation that the floor is cold.  It's hard to explain but it's very different.  Right foot is 100% cold sensation and my left foot is like only 20% cold sensation.\
Then I also get this sensation of cold heat to my feet.  My feet will feel like they are burning and when I touch them they are cold like ice.  What the heck is going on here????
Still doing my Pilates.  Boy does it make my pain in my left hip feel better.  I don't know if its the stretching or what.   I don't look any different though. Wish this stupid steroid weight would go away.  Never had a big belly, now it just won't go away.  Go away big belly, go away!!!
"you're never beaten until you admit it".....George S. Patton

Tuesday, February 9, 2010

Energizer Bunny

My husband bought me this little netbook for Christmas, was the best thing he ever got me.  I can sit and do my blog while lounging at the end of the day.  It's hard to sit at a PC and focus when all I really want to do is lounge.  My energy level is zapped and the more conservation the better.
I had my accupuncture appointment today and I alway leave there feeling so much better.  I don't know how it works, but it does.  My pain is significantly reduced and I get to rest during the therapy.  Its so relaxing.  I leave there feeling re-energized.  Now if I could only figure out how to stay that way.
When I came back from my appointment I ran around doing chores in my house and there went the Zen I had achieved.  Wiped myself out and ended up on the couch taking a 2 hour nap.  Then did a few more things and now I am back at the complete exhaustion state.
Today I am not going to do my Pilates, mainly because I am so tired.  Sounds bad, but.......  They say when you exercise it's supposed to give you more energy, but when I exercise I am fried.  Even the small amount I do seems like marathon.  Maybe I will get back to the point when my strength and stamina will be near normal.  Maybe if I change my batteries, I could be like the Energizer Bunny.  Maybe that's the secret. Hmmmmm....

"The man who smiles when things go wrong has thought of someone to blame it on."   .....Robert Bloch

Sunday, February 7, 2010

Today

Went to church today and how nice is it to be missed.  I was not able to go the last few Sunday's because of how sick I was.  Today I got to go and it always make me feel so good inside.  Not only do I get to go to church to learn about my God and my Saviour, but I get to spend a few hours with my church family.  You go and you know you are loved and people care about how you are doing.  I mean really care.  Not just the courteous  in passing how are you feeling.  But the put an arm around you hug and ask, making eye contact, and really wanting to know what you are experiencing.  How great a feeling is that.
Generally speaking, when people ask me how I am doing, I say O,K,  I don't like to say what I am really experiencing because it would be the same conversation over and over.  I like to keep my friends and family and I am not sure that they really want to know everything.  I tend to keep most of it to myself unless they can hear it in my voice.  When I am really sick, it is apparent.  I look sick, at least that is what people tell me.  At the end of ordinary days, I look exhausted even if I did minimal tasks.  When I am sick, at the end of the day I look like death warmed over, which I can tell you is not a very becoming sight.

"Since love grows within you, so beauty grows. For love is the beauty of the soul."St. Augustine