Welp, it's been a while. No excuse, probably sheer laziness. Been off Copaxone, then on Rebiff, now back to Copaxone. Hmmmm. The good thing is that either way I am still living with MS. or wait, is that the bad thing.
Started back to school so I can turn my RN into a BSN then eventually a MSN. Since I can't really work the floor anymore I will subcumb to that old addage "those who can't do, teach". I don't know if it's a good plan or not, but it's worth a try.
I started a research study, felt like being a guinea pig for a while. Still having to take copaxone but now with an added pill (placebo or not). It's a blinded study so I don't know if I am actually getting the study medication or not. I get a cognitive exam every 3 months or so. I am hoping to not have a decline in intelligence, but if you notice misspellings don't assume it's just a mistake :)
Every day I decide that tomorrow is going to be a new day and a new start. My diet is going to be better. My walking is going to be better. My energy is going to be whoop whoop. And every night I think about how I blew it for that day. But the good thing is there is always tomorrow.
Title pretty much says it all. Journal of dealing with this very confusing condition on a daily/weekly basis. Sharing laughter, frustrations, and all the emotions that come with Multiple Sclerosis.
Welcome
Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
my blog
Sunday, October 17, 2010
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