Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
my blog

Thursday, February 10, 2011

Back to the AFO

Well today I got my AFO for my left foot drop.  It's not pretty, but I sure can walk better.  My toes are not getting in the way.  My left hip is not having to compensate.  It's weird how my body adapted to that foot drop, because it seems so foreign now that my foot is in anatomical alignment again.  I feel like Mr. Roboto now when I walk, but hey it works!!!!!
Still feeling good.  Breathing a little easier these days now that I have a little bit of hope.  The way I have felt for the past year and a half was very hard to deal with emotionally.  I don't want to ever be in that place again.  
Still not driving for long distances, mainly out of fear.  I don't want to wear myself out and be so far that I can't drive myself home. The good thing is I can get out for short periods of time and feel like a normal person.  My work is going awesome too.  The shorter shifts are so much better.  I don't feel so drained when I come home.  I did have to take a nap after work today, but it was early enough to allow me to enjoy the rest of my evening.


http://www.youtube.com/watch?v=SbyAZQ45uww



Sunday, February 6, 2011

the absent minded professor

Okay, so I am still walking better and better everyday.  Yay for me.  But, (there's alway a but, not that kind, the other kind), now my short term memory is all messed up.  What's up with that??????  I have resorted to my cell phone for some reminders.  I mean everyone walks into the kitchen once in a while and thinks what did I come in here for.  But literally, I will have gotten up 4 or 5 times with no inkling of what I got up for.  
And I can't spell worth anything anymore.  I have spell check red underlines all over the place now.  I know I didn't do well in the 6th grade spelling bee, that darn u in beautiful tripped me up, but this is getting to be slightly ridiculous.  I have always prided myself on my vernacular.  I never use words that were too pompous, but come on.  I looked at my posting for my school discussion board and I was using their for there, so no spell check flag.  What's up with that????
Lately too, I'll be singing, (aww come on, I'm not that bad) and I stumble all over the words.  Let me tell you, kind a weird when you have your ipod in your ear and all the rest of the world hears nonsensical sounds coming out of my mouth.  Arggghhhh.  I love to sing.  MS stay away from my singing......


http://www.youtube.com/watch?v=QGJuMBdaqIw