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Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Tuesday, February 21, 2012

MS Hug

Hugs.  When you think of a hug, you imagine something warm and comforting.  A MS hug is far from comforting; it's something that you dread.  It comes on all the sudden and can last for a few minutes or for hours.  I posted the details of what causes it and what it can feel like in the previous post.
For the past few days and a couple times in December, including one on Christmas day, I had the pleasure, errr.....rather displeasure of feeling this hug in full action.  I have always had an uncomfortable feeling at times around my waist, kind of like when you wear pants that are too tight. 
 But the past couple of days, I have woke up with the worst kind of chest pain imaginable.  Picture the scene in Indiana Jones and the Temple of Doom where the dude reaches into the characters chest and squeezes his heart out.  That is the only imagary I know how to explain what I felt.  I felt like something was squeezing my heart and would not let go. 
The previous times I had this it only lasted about 20-30 minutes, but a few nights ago, it woke me straight up from sleep.  I had previously gone to the hospital in December thinking I was having a heart attack, but everything came out normal, so this time I decided to wait it out.  An hour past, then 2, then 3 and the pain was so excruitiating.  The pain is so bad that it makes me want to vomit, or nearly vomit.  I tried pain medication with no effect.  We finally called 911.  I just could not take the pain anymore.  Nothing I did was making it go away.  My poor husband just did not know what to do. 
I get to the hospital, the did all the cardiac tests, and the doctor cleared me from any heart issues.  They determined it was the MS hugs.  I received a boat load of IV pain medication in order for the pain to go away.  I slept away the whole next day.  Last night it came back again.  Awful, horrible pain.   Worse than giving birth to my 2 children, and I did not have pain medication with them.  Last night, luckily, it only lasted 20 minutes and they had prescribed me pain medication. 
I fear that pain coming back.  I wish that pain on no one.  I can't imagine any pain worse than that and if there is, I hate to even think of it.  I hope that none of you ever have to experience it.

"Chest hug" is not life-threatening : National MS Society