So the funny thing about life is that it just goes on. No matter what you feel like. Happy, sad, tired, full of pep, ready to concur the world, or ready to hide under the covers. Life happens. It has taken me so long to write this next post, because I was at a standstill while life was happening.
Had another MRI, 10 lesions, with "slight" progression of demyelation. Makes me wonder what their definition of slight is.
The trouble with MS is that life does happen. In the past couple of months, I have had a relapse, a father whose cancer has returned, worries over a teenage daughter who is struggling in school academically and socially, a son who is autistic, feelings of isolation, having a change of social environment for myself, missing working in the hospital as an R.N. and so many more life style adjustments I can't even remember, frustrating doctors, oh and an increase in some pain, especially in my head.
The past few days, I have been able to walk a little bit better. This always offers a little hope. I went to a craft fair today. How I love to go to craft fairs. Brought my spirit up. All those people. I just love to watch them. I wonder if they know how lucky they are to be able to walk around and browse. I lasted a little longer than usual, about an hour and a half, but I was dragging my feet along with my cane by the time we left. It was definitely worth it. I will probably pay for it with exhaustion for the next few days, but today I was part of life.
It is night. I am sitting here typing this and my eyes are so tired, I can hardly focus. I know that when I get up from this recliner, I will be stumbling down the hall, running into the walls, trying to make it to my bedroom without knocking any of the pictures down. The truth is, it will be worth every ache in pain and step backward I will take tomorrow, because today I got to participate.
My hope is tomorrow, I will be lucky enough to participate too. MS is strange that way. You just never know what you will wake up to. More than likely, it won't be so great, but you never know. Maybe, just maybe, I will be on a lucky streak.
http://youtu.be/w_DKWlrA24k
Had another MRI, 10 lesions, with "slight" progression of demyelation. Makes me wonder what their definition of slight is.
The trouble with MS is that life does happen. In the past couple of months, I have had a relapse, a father whose cancer has returned, worries over a teenage daughter who is struggling in school academically and socially, a son who is autistic, feelings of isolation, having a change of social environment for myself, missing working in the hospital as an R.N. and so many more life style adjustments I can't even remember, frustrating doctors, oh and an increase in some pain, especially in my head.
The past few days, I have been able to walk a little bit better. This always offers a little hope. I went to a craft fair today. How I love to go to craft fairs. Brought my spirit up. All those people. I just love to watch them. I wonder if they know how lucky they are to be able to walk around and browse. I lasted a little longer than usual, about an hour and a half, but I was dragging my feet along with my cane by the time we left. It was definitely worth it. I will probably pay for it with exhaustion for the next few days, but today I was part of life.
It is night. I am sitting here typing this and my eyes are so tired, I can hardly focus. I know that when I get up from this recliner, I will be stumbling down the hall, running into the walls, trying to make it to my bedroom without knocking any of the pictures down. The truth is, it will be worth every ache in pain and step backward I will take tomorrow, because today I got to participate.
My hope is tomorrow, I will be lucky enough to participate too. MS is strange that way. You just never know what you will wake up to. More than likely, it won't be so great, but you never know. Maybe, just maybe, I will be on a lucky streak.
http://youtu.be/w_DKWlrA24k
