Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Thursday, December 2, 2010

blah blah blah blah

I am in the last week of this semester.  Tired is the only way I can describe how I feel about it.  It's funny how much energy it takes to write papers and do power points.  Only one more paper to do, then a little break.  Yay!!!
My legs were not cooperating with me today.  My muscles ache like I ran a gazillion miles.  I took a nice long nap to recuperate just from going to Costco.  We were there for an hour and a half, but I feel like we walked all day long.  I have a headache, my legs ache, and even my ache's ache :0)  
And may I say, Thank God for leftovers.  I don't like to waste food, so I put all my leftovers in tupperwares in the freezer.  Days like today, I can take out a nice dinner from our freezer.  Today was Steak fajitas.  They were even better than the first day. Some days we have a potpourri of little meals when there is only a serving or two in the freezer.  Sometimes on days that I feel terrific, I make an extra meal just to freeze. That way we can eat a home cooked meal on days like today without all the work.  Although I have to say my hubby can cook pretty well, but he has so much on his plate already (no pun intended LOL).


Monday, November 29, 2010

freaky

SO I have been having some freaky symptoms since September, each day they get progressively worse.  I don't know what they mean, although the neurologist told me that it may mean I have a lesion on my cerebellum.  I thought just plan old vertigo was bad, I have had that off and on for a little while. However, since September, I even get vertigo that wakes me up from my sleep.  I roll over to my right side and it's as if the world is spinning.  I wake up feeling nauseated.  Now it's progressed to the point of when I look up, or tilt my head to the right, I get this sick feeling in my stomach and the world is turning. This is a little frightening to me.


I can't just roll out of bed anymore either.  Seems that my balance is at it's worse when I just wake up.  At least when I fall, I fall back onto the bed.  I may have already wrote about this, but my memory is just not that keen.  It's funny because I used to remember even the tiniest of detail, as well as very intelligent.  Now I can't seem to finish a conversation without forgetting what the topic was or without being able to articulate what is in my head.


The little electricity thing is back in full force as well.  Whenever I move my head up or down, side to side, I get the feeling of what I can only describe as static electricity across my shoulders and down my spine.  Very bizarre sensation.  L'Hermittes sign is what they call it.  


http://www.youtube.com/watch?v=xFNUvJyXCvY&playnext=1&list=PL7444A84C59B08D0E&index=26