Field Guide

I think that once you have been diagnosed with MS, you should be handed a field guide.  One that tells you how to handle any given situation.  For example, on page 33 it would tell you in situation where you stumble and fall in public say a quick one liner joke like "Thanks everyone for coming today, that's all folks"!!!  On page 61 it would go over how to date with MS, like how to handle slurred speech during a date. For example, step one play coy and demure, answering with just yes and no answers.  Step two, bat your eyes, listen intently and let him do all the talking etc.......  On page 102, it would be on MS and fashion statements, such as how to coordinate your cane with your handbag.


I really would like MS to be a straight forward disease, following a consistent pattern.  I think that is what is hardest about MS, it is so variable from person to person. I have heard so many stories about somebodies aunt uncle's cousin's friend who has MS and they are working, hiking, shopping, living it up just like normal.  Well, I want someone to say that story about me, except it's not happening to me.  Hmpfff!!!  Today my body was not cooperating.  Went to work in the morning yesterday just fine, but in the 7th hour of the day, I was so fatigued that my legs were not cooperating, my speech was slurred, and my vertigo worsened.  Went back to work today even though I had not really improved much, and of course back home in 4 hours.  Where is that Field Guide when you need it?  Page 120, how to remain a productive person in society.


http://www.godvine.com/The-Hospital-Window-a-Truly-Inspirational-Short-Video-23.html

Holiday season

Well so far the holiday season has not turned out as I expected.  I am having a little bit of a slump.  Today is my birthday, doesn't really feel like it.  Although my son made me quite a tasty breakfast with some yummy hot chocolate to boot.  I am lucky to have such wonderful family, my children are turning out to be good hearted people as well.
I am walking better except when I start to get tired, but overall so much better than the beginning of December.  I can walk for short distances without my cane, Yipee!!!  Still having some balance issues.  Having less vertigo, comes in waves;  it's kind of weird.  Sometimes when I lay down, the world starts to move around me.  It's one of the oddest sensations that I have ever experienced.
I know at times I repeat myself, it's just that, honestly, I can't remember what I have said before. Short term memory problems at times. Although some how I have no trouble remembering the traumatic or the dramatic stuff that goes on in my life.
I hope that everyone has had or is having a wonderful holiday season.  My gift to myself was skipping one dose of my shot.  Felt like it was the greatest present to myself not to have to endure that shot for one night.


"I have always thought of Christmas time, when it has come round, as a good time; a kind, forgiving, charitable time; the only time I know of, in the long calendar of the year, when men and women seem by one consent to open their shut-up hearts freely, and to think of people below them as if they really were fellow passengers to the grave, and not another race of creatures bound on other journeys."  ~Charles Dickens