Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Sunday, December 12, 2010

Complications

So, I am walking a little better, crazy though because as soon as I get up from a laying position, I am still falling over.  No fun.  It has taken me until today (at least so far), to be able to walk around a little without the feeling of tunnel vision (from steroid withdrawal).  Did you know that not walking around as well as the steroids along with MS leads to another complication?????  Well I knew that but still didn't take any precautions so landed back in the ER last night AGAIN.  I swear that they should just put in a revolving door for me, or maybe I should just call to make reservations. 
 Anyway, the little (huge) complication involves motility of the bowels.  Not a pleasant topic or thought, but none the less, it is such an awful feeling, painful to boot as well.  Got some IV fluids as I was dehydrated,  Got some anti-nausea medicine that made me feel kinda goofy (no real change for those of you that know me), then home, pray for the world to start moving again.  
When I worked on the floor as a nurse, I never understood the fixation that some people had with their bowels. There was always someone who would say that they haven't gone in a day or two.  I was like what's the big deal. Well I suppose the big deal is that everyone's is the expert at their body chemistry, but some how medicine is still antiquated enough to think that they are the experts.  Not everyone fits in a neat little box.  If someone's norm is once or twice a day, then of course they would be worried.  Due to MS, I have the opposite, days and days.  THis time it has been a week, talk about uncomfortable.  
The following link seemed appropriate :0)


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