Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Tuesday, February 1, 2011

snow day

Today was a snow day for many people around the United States.  It rarely snows where I am, but today was most definitely a snow day.  I love the snow not the blizzardy kind, but nice peaceful big flakes floating to the ground kind.  That's what today was like.
I seem to get more tired when there is a weather front.  I wonder if that is what it is like for everyone? I can't seem to recall what it felt like when I was "normal".  My memory seems to be fading a lot.  
I am still walking better each day.  I am holding my breath that it stays that way.  I actually did a little bit of dancing to my Ipod while I was cooking dinner. (well dancing is not quite what others would call it, but it worked for me).
My right eye seems to be all over the place.  I am back to seeing dark spots in my vision when I exercise.  Speaking of which, I can do a whopping 7 minutes now on the stationary recumbent bike.  Woo Hoo!!!!  May not seem much to anyone else but it feels so good to know your muscles can push the pedals again.  It's the 5th month of the Copaxone shots, I wonder if they are kicking in.  Or maybe I am on the actual study drug.  Whatever it is, just keep kicking in.  I am ready to enjoy my legs again.  I haven't been quite as dizzy either.  Still have some issues when turning my head to the right and the curves my husband takes when he's driving. (sorry hun, I love you but you are mr. Speed around the corners).
Last night, after my daily shot, I was wondering if I could handle taking this shot for the rest of my life.  The shot gives me huge welts that lasts for almost a week.  I guess if it means the difference between walking and not, then I will suck it up.  I sure do hope a "real" pill comes out soon.  Not one whose side effects is worse than the disease.
Well, that's all folks.  Stay warm and cozy.  Drink some yummy hot chocolate.


http://www.youtube.com/watch?v=YDp88CkjY_k








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