Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Saturday, January 22, 2011

Field Guide: Chapter 5 I hope you dance

I forgot what chapter I am on, but basically at this point you are probably already over-saturated with information from the internet, your doctor, well meaning family and friend, but most of all you are scared.
I am scared.  I don't know what or who I will be in a year. Unfortunately this illness changes you in all aspects of your life.  You have to rearrange your goals and expectations.  I have had to do a lot of rearranging.  My abilities as a nurse has changed dramatically.  My abilities as a mother have changed dramatically.  My abilities as a productive citizen of society have changed dramatically.  
I don't know where I will be at this time next year.  My hope is that I will be no worse than I am today.  My philosophy on life has always been "if this is the worst thing that happens to me today, then it will be a good day". 
I am ready for all the good days to come, but how do you prepare yourself for the bad days.  I am not sure you can.  I believe that a positive outlook is a much better approach than being pessimistic.  How can you enjoy the things that you CAN do, if you are dwelling on the things that you can't?
Being scared is okay as long as it does not take over your life.  Have faith.  Have Hope.  Educate yourself.  But most of all, live each day to the fullest, that way when you look back you can say, MS did not get the best of me.  "I hope you dance."


http://www.youtube.com/watch?v=RV-Z1YwaOiw

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