Welcome

Welcome to all who visit this Blog whether you suffer from Multiple Sclerosis or have a loved one who does. Hopefully this will help all who read understand that they are not alone even though MS affects us all in very different ways. Maybe it can help open eyes of those around who do not know the unpredictability of daily life with MS.
The purpose of this blog is to offer support and inspiration. Please feel free to share any useful information that you have gathered along your journey and words of inspiration. It is hard to overcome all the obstacles we must face and it is nice to hear ways people have adapted. Inspirational stories and anectedotes are especially sought after.
If you post and suffer from Vision disabilities you are welcome to post in all capitals and no one will think that you are shouting.
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Monday, January 11, 2010

doctors

Today I spent all day out at dr's appointments.  One for my daughter and two for me.  I left the house at 730 this morning and now it is 5:48 and I just got home.  The 2nd doctor I saw today took forever, waited in the room for over an hour.  Why is it that if you are late for your appointment more than 10 minutes they can cancel and reschedule, but when they are late it's okay.  You should be able to tell your doctor, well you have made me waste one precious hour of my life so that will be 100 dollars please.  When the doctor finally came in, he spent less than 5 minutes with me.   What, 5 whole minutes, how generous.  Makes me think, what the heck was he doing for that hour if he only spends 5 minutes with his patients.
Well, I should mention that during that hour I got to spend 20 minutes or so napping on the patients table thingy.  I don't know what it's called, but when you are tired anything will do.  At one point I looked over at my daughter and she had her eyes closed with her head against the wall.  That didn't last very long for her.  She kept making loud uh-huh noises to get the attention of anyone passing in the hall so that someone, anyone, would at least peek in and notice that we were still there.  It didn't work.
Now that I am at the point of sheer exhaustion and my body is very mad at me, my day is still not over.  Thank God for drive-thru.  Dinner is on Mickey D's and Panda Express.  I am sure there are some sort of vegetables in everyone's meals.
The most dreaded part of the day comes at bedtime.  This is the time I must endure the daily shot, Copaxone.  It is very painful and I have tried many different techniques and tips on making in less painful to no avail.  Most of the time I am left with big welts that last for days and no fun.  My darling husband usually gives me the shot, voluntarily may I say.  The worst part is I am not even sure it is working.  I have had numerous relapses since I have been on it and even today my primary care doctor wanted me to go to the ER to be evaluated for admission.  They say it takes up to 6 months to work and I am on month 5.  Keeping my fingers crossed.
Now this Blog is supposed to have words of inspiration so here they are.  No matter what gotta keep on truckin....   That's what I do, well not in a truck, just a little sedan, but nevertheless :0)



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